Contact me

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email me at: beingcancer@att.net for off-post comments or for questions regarding T-PLL

*at least one reader from abroad (Australia) had difficulty sending to the above email address.ย  Alternate addresses are: dphealthcare@att.net and dennis.pyritz@att.net

Please feel free to comment on individual posts or feature pages.ย  This is what I want most for the blog – dialogue and community.

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Contact me — 73 Comments

  1. Hi Dennis,

    Thank you for including my blog to you blogroll and thanks for the words of encouragement.
    I read your blog and I found it to be very inspiring and very helpful.

    I really aprreciate you for reaching out to me.

    Hang in there!
    Stamatia

  2. Thank You Dennis for adding by blog to your list. I have enjoyed visiting your site. What a wealth of information. Mine is also Triple Negative if you would like to add that. I know sometimes it takes awhile to weed through and find a specific type. I will continue to lif you up in prayer also. Thanks for sharing your journey. BTW I am a NICU RN. What is your RN area of practice?

  3. Hi Dennis,

    We spoke last October when my husband had just started his 18 week course of Campath Sub-Q three times per week. He did very well and saw a marked improvement around Thanksgiving. He was tested and declared to be in remission from the T-PLL in March of this year. He continues on a maintenance regime with gradually decreasing doses of Campath. We are now in the process of pursing a reduced intensity allogenic bone marrow transplant later this year.

    All the best to you and your family. You are an inspiration!

  4. Thank you for the nice comment on my blog & for introducing me to yours! This is a wonderful thing you are doing for the cancer community and I wish you the best of luck. I’ll probably be lurking around & participate more (book club, etc.) once all the baby mania has settled down around here! Thanks again – Alicia

  5. Hi Dennis,I just want to salute you for the wonderful service you are providing especially to all of us cancer bloggers out there. I am one of those many breast cancer bloggers, you mention. I write staying well after treatment has ended and integrating the experience of cancer into your “new” life. Visit me at http://beyondbreastcancer.wordpress.com/. I love to hear and learn from new readers.

  6. Hi, Dennis! Thanks so much for including the excerpt from my blog as a guest post. I have never pushed political advocacy before, either, but I feel so strongly that now is a moment in time that WILL NOT COME AGAIN SOON, that I had to speak out. Whatever happens, we need some sort of change. Thank you for helping me raise the level of awareness about young adults with cancer.

    Best regards,
    Heidi Adams
    Founder / Executive Director
    Planet Cancer

  7. Thank you for your nice comments about my humble blog http://www.susiehemingway.blogspot.com I also blog on http://www.susiehemingway.com where if you so desire, you can hear me reading one of my poems “I Write For You” from a BBC radio Interview, just scroll down past the poem “Love Smiles” and ‘click-on’ the MP3 Player for the interview. I am delighted to see such a wonderful web-blog covering every Cancer. MM is just 1% of all cancers and we are doing as much as we can to raise the profile. Thank you for linking me to your site.
    Sincerely Susie.

  8. Dennis, I have written to you before regarding my husband that has TPLL. The last I wrote he had relapsed and was again doing the campath and pentostatin that he had received at first diagnosis. He had a bone marrow transplant in Aug.of 05.
    Larry finished the campath regime in May,at the end of June relapsed again. This time it seemed much worse as he had skin involvement. He has started on Nelarabine again and is ready to go into the second round. The Dr. is talking second transplant or DLI. My question to you is, when you had your transplant what drugs were you given prior to transplant? Larry had been given campath at transplant to lesssen the effects of gvhd. This was a part of the protocol at MD Anderson at that time. Did you receive campath at your transplant as well? We have decided to pursue transplant here in Dallas, since our children live near by. We feel like we need the emotional support of family. More so we really like the transplant Dr. here, and Houston was just to far to be going back and forth.
    I love reading your blog, all of the information at your website has been very helpful. Thanks, Anne

  9. Dennis, What an awesome site you have created. Thank you for doing so much to support the cancer community. You have integrated your techno-savy internet know-how with your cancer experience and knowledge to put together a very worthwhile resource.
    Thanks also for visiting “A Cancer Journal”. I’ll set up a link to your site.

    Rob Pollock
    “A Cancer Journal”
    http://rob-pollock.blogspot.com/

  10. My daughter has written an essay on cancer challenges and needs a blogspot on which to post. Is it possible to post it here? You can certainly review it first for appropriateness of content.
    Debbie Morich, M.Ed.

  11. wow dennis! extremely impressive site you have here. i got your message you left on my blog, and i will for sure add your site on my blogroll. just an fyi tho…my blog is listed in your index as breast cancer, but i have ovarian ๐Ÿ™‚
    thanx!

  12. Just checked out your site and you have done a wonderful thing here for all cancer patients and caregivers. What an excellent way for everyone who is dealing with cancer to obtain the kind of information they are looking for…I am going to write a post about your site on my blog this coming week.
    Thanks again for checking into my blog as well.
    Deb

  13. I have recently come across a company that dedicates itself to helping children understand medical conditions like Leukaemia, through comic books and entertaining media. Because of the lack of medical resources out there for children, MediKidz educates children about health conditions in their language and at their level. These books have really helped my family and I, and I truly recommend you all looking it up at medikidz.com

  14. I have just found this site and just want to say BRAVO! – the more places there are for cancer sufferers to link up to the better.

    My cancer is a “benign” brain tumour (meningioma) but benign can be a misleading term!

    I am blogging about it, both as a kind of therapy for myself and as a resource for others with a similar diagnosis, if anyone is interested …..

  15. Hey there Dennis,
    I join your ‘little club’ this year. I am currently under Campath treatment (week 12) and next month I am scheduled for a Bone Marrow Transplant. Right now, i have a hard time believing that I am sick; even though I take the meds and feel tired a lot of the time. I know that this will end at the transplant.

    What I am curious about is your ends of remission the first couple times. Were there any signs you should have realized? At what point did you start to feel comfortable and when did you feel sick again?

    See, i didn’t recognize any signs; I went to the Emgency room for what I thought was back spasms. turns out my spleen had enlarged to 4x its normal size.

    Thanks for writing about your experience and sharing.

  16. Dear Dennis,

    As a physician and 20-yr survivor of recurring lymphoma (indolent), Iโ€™ve devoted myself to thinking, talking, reading and writing about survivorship.

    I have a regular column in Oncology Times called “View From the Other Side of the Stethoscope” in which I advocate for patients.

    Since 2008 Iโ€™ve hosted a blog on which patients, caregivers and healthcare professionals (including those in training) can discuss how modern patients can get good care and live as fully as possible.

    I invite you to visit it and add your voice: http://www.wendyharpham.typepad.com

    Thank you for your work creating this “portal” to highlight cancer resources.

    With hope, Wendy

  17. Aloha Dennis:

    We would like to let you know that we have a cancer retreat center on the island of Hawaii. We offer both individual/personal and group retreats. Our group retreats are free of charge.

    Kokolulu Farm and Cancer Retreats Inc. in Hawaii is a non-profit organization that provides education and charitable assistance to those affected by cancer by providing holistic healing retreats, research publications, and sharing tools that empower participants to take charge of their own healing journey

    Often, when a person is given a cancer diagnosis, itโ€™s as if their life has been taken out of their hands, like a hamster on a wheel, just putting one foot in front of the other with no power to change direction. Kokolulu Farm and Cancer Retreats, an organic farm on the healing island of Hawaii, offers an escape to a peaceful environment where emphasis is put on regaining empowerment to take charge of oneโ€™s own healing journey, while offering a respite from endless medical appointments, stresses and strains associated with the diagnosis and pressures from family, friends and job! Qualified trained healthcare professionals work together with you on such tools as exercise, nutrition, meditation, qigong, reiki, massage, guided imagery, laughter, journeys to sacred Hawaiian sites, the ocean and other relaxation strategies.

    Trade Mark: Kokolulu Farm and Cancer Retreats February 16, 2010

    We would appreciate you sharing this information with others. Mahalo!

    Malama Pono!
    Aloha and Peace

    Lew and Karin Cooke Whitney
    KoKoLuLu Farm and Cancer Retreats Inc.
    Individual & Group Retreat Programs
    QiGong
    P.O. Box 340
    Hawi, Hawaii, USA 96719
    phone: (808) 889-9893
    e-mail lew@kokolulu.com
    web sites: http://cancer-retreats.org/ and http://www.kokolulu.com/

  18. Dear Dennis,
    What a wonderful resource you have created. I would like to let people know about my blog, chronicling my husband’s experience with Sarcoma. I think it may be helpful for others who find themselves dealing with this rare and dangerous cancer.
    Thanks,
    The Cancer Wife

  19. I am asking all of my friends (and friends of friends) to help me support a child cancer foundation that I really believe in.

    It is a facebook contest at http://bit.ly/crkrEE and the name of the foundation is called The Seany Foundation (their site is at http://www.theseanyfoundation.org/).

    Seany died of Ewing’s Sarcoma cancer a few years ago and he was a teenager. I knew Seany and promised his family I would help where I could. Chase Bank is having a charity contest ending in about 6 days and if you could VOTE (it is free to vote) with your facebook account AND post it to your facebook wall, I would really, really appreciate it. http://bit.ly/crkrEE

  20. Hi Dennis
    You probably don’t remember who I am but I will jog your memory – a ol’ co-worker and friend from Indiana Community Hospital…I am amazed how much you have accomplished in your lifetime and am interested in stem cell research…fascinating. And how are you surviving this rare disease you have been suffering from? Sincerely,
    Connie (Hargrove) Patterson

  21. Hi Dennis,
    Love the new layout – really easy to navigate around.

    It would be great if you would consider adding my blog to the Colon blogs (I have Stage 3 Rectal Cancer). I have your blog listed in my favourites and know that others have found you via my link and have said how great they think your blog is.
    Thanks for putting everything together, All the best, Carole x

  22. Hi Dennis, thank you for reading my blog and adding it to your blog roll. I’ll be adding this site to my list. Your site is a great resource. Thank you for all the work.

    Take care. I hope all is well.

  23. Thanks for adding my blog to your ‘liver’ category, Dennis. I was recommended this site a while ago by another blogger and registered as a follower of the other liver cancer blogger (though she has secondary; it seems ‘my’ type, primary is rare in the UK). Sadly the other 2 in the list no longer have working links. This is an excellent site and thanks for being so complimentary about my blog!

  24. Hi Dennis and many thanks on creating this wonderful resource. I am a survivor of Bowel Cancer and have decided to spread the word by being the first person to circumnavigate the globe in an autogyro. My flight is dedicated to all sufferers and survivors of cancer and I actively use the media coverage I get around the world to bring attention to the fact that there is life after cancer.
    I have kept a blog since I started the journey and it can be read at http://gyroxgoesglobal.blogspot.com/ and I hope you add me to your list so that others can be inspired by my adventure, yours sincerely
    Norman Surplus

  25. I don’t know if this is approporate.

    Shades of Blue (ovarian), Shoppingkarma (ovarian)and Livingwithcancer (Breast) are all now in hospice care. Pateeta, Jayne and Daria are wonderful women whom have provided me with courage and inspiration. If you have prayers to send, I’m sure they’d be happy to receive. God Bless all who suffer.

  26. Hi Dennis,
    Sorry to bother, but I tried to sign in to the site but for some reason I’m not able to. I’m not sure I know how to navigate around here ๐Ÿ™‚
    I’m looking for your help, if possible.
    I am a cancer patient, and back in January I was diagnosed with both ovarian cancer and breast cancer. These are two different types of cancer, attacking at the same time.
    I have a blog about it at WordPress. Could you please have a look and perhaps add it to your list?
    The blog is called ‘Cancer By 2’ and the web address is:
    http://cancerby2.wordpress.com/
    Could you please visit? ๐Ÿ™‚
    Also, I would like to add your badge to my blog, and I’m not sure how to do that? Just copy the photo? Is that all?
    Thank you Dennis, for all your help, for everything you do for us, us, the cancer patients ๐Ÿ™‚

  27. Oh my God, Dennis, I’m crying rivers here!

    It’s me, Andrea (see above post), I’m back to thank you for everything that you’ve done for me, for taking the time to read my blog, for deciding to feature it on your site, for giving me the oportunity to have a voice.
    English is not my first language and writing that blog is difficult, and I’m in pain, I’m fighting my tumours and I’m sick, and it’s not easy. By sharing my experiences my only hope is that I might, one day, be able to help a worried woman, someone, somewhere, even in the smallest way.
    I’m so grateful for what you’ve done for me, Dennis, thank you!
    In only 2 hours I had over 140 views! This is the gift that your site and your reputation has given me, the joy of sharing, the feeling of being useful and the voice to educate and inform.
    Thank you, Dennis ๐Ÿ™‚
    Very grateful, forever.
    Andrea

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