Feels Like Forever – guest post

"Bad Day" by 5 year old Sophia

Short post today.  Both myself and my guest blogger are tired.  I just have a bad cold.  Cindy is struggling with putting her multiple myeloma in its place.  You can find her at Cindy’s Multiple Myeloma Blog.

It Feels Like Forever

It feels like forever since I’ve written in here.

It feels like forever since I’ve had Multiple Myeloma.

It feels like forever since I could walk without help.

It feels like forever since I could go to the bathroom normally and feel I actually accomplished something.

It has been forever since I worked. My last day working was 10/4/05…or was it 10/3/05? I don’t even remember.

As I start typing this I realize I shouldn’t have started this entry, as I am nearly nodding off. I’m in serious need for a nap. Ever since I got sick, when I get fatigued – it’s over. I can almost fall asleep standing up (with my walker of course). I better hit the main points fast. . .

MM-wise, I’m doing great. My oncologist even extended the lapses between visits to four months versus three months. My lab numbers improved a bit last time; seems I’m healing myself on my own. I think this flucuation is normal in a partial remission like what I seem to be in.

As for medications, I’m on but a few. I take 5mg Methadone three times a day (15mg per day total). I take blood pressure medicine, I think it’s Lisiprol…no…I forget. I think it’s 20mg. I used to take Norvasc 5mg. It did fine but my ankles and feet were swelling. When I changed bp medicines, the swelling went down and my bp remained just fine. That’s all – except for the Intrathecal Pump with the Lioresal.

I’m just so sleepy I’m falling asleep typing. I will return and desribe more of what’s going on and where I’m at.

~ Cindy’s Multiple Myeloma Blog

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About Dennis Pyritz

Dennis W. Pyritz, RN, BA, BSN, has been a cancer nurse since 1987 and a cancer and bone marrow transplant survivor since 2004. In December 2001 he was diagnosed with t-cell prolymphocytic leukemia (T-PLL), a rare aggressive form of chronic lymphocytic leukemia (CLL). Dennis was treated with the then new monoclonal antibody, alemtuzumab (Campath) as this disease has a median survival of 7.5 months. He achieved a 26 month remission but relapsed in February 2004. He was retreated with Campath and went into a second remission. In August 2004 he underwent an allogeneic peripheral blood stem cell transplant with his brother, Mark, as donor. Dennis has remained in remission since - a near miracle. Throughout his career as cancer nurse and patient, Dennis has had the opportunity to speal to both lay and professional groups. Dennis has spoken on cancer topics and survival issues across the country as well as in the United Kingdom, Norway, Austria, Portugal, Honduras, Panama, Guatemala, Trinidad, United Arab Emirates, Jordan, Cyrpus, Israel, and India.

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