Cancer Sites reviewed

The lighthouse logo is being incorporated into the structure of the website.  Echoing the photo theme in the header and the “About This Site” page, this logo is actually of the Tybee Island lighthouse, in the shadow of which I began my recovery after my first remission.  I think the image reflects the sheltering qualities of an on-line cancer community – a safe harbor, a refuge from battling the elements, a place to launch from and return to.

Surfing the web and just answering email, have led me to new cancer sites.  I would like to share a few with you.  My Life Line. Org is a service similar to Care Pages and Caringbridge. This site is devoted entirely to cancer patients and helping them to set up simple, journal-style blogs.  All of these sites are useful in getting information about your treatment and progress out to friends, family and interested others.  They are also ways to get your feelings and frustrations out.  Starting out one of these mini-blogs is as easy as signing up.  With My Life Line friends can also post messages of love and support.  You can store up to 100 photos on your site, as well as set up a calendar for important events such as surgeries, tests, physician appointments, end of chemo, etc.  Inspirational quotes are provided when you visit your site.  There is also the option of setting up a page to seek financial donations for your treatment, etc.  The home page of My Life Line is well-designed and easy to navigate.  Free cancer support, cancer patient, cancer information, free personal website, caregiver

In researching new links for the blog list this week, I ran across a site in the UK called BT Buddies.  The BT stands for “brain tumor”.  Although this is a UK site, members listed were from the USA, Australia, and New Zealand.  Bt Buddies provides information about high-grade brain tumors, treatment decisions and treatment courses.  Stories of Hope and a book store are also provided.  The section on financial and practical help seemed particularly useful.  This is a site for a group of people that get less attention than other cancers.  It is a cancer that offers very specific challenges for those affected.  About BT Buddies

Last week I received an interesting email from a woman named Susan.  She wrote “I am an oncology nurse and breast cancer survivor. I was diagnosed in 1992 and elected to have a mastectomy and full course of chemotherapy. Out of that experience I created a business to help women experiencing cancer and undergoing chemotherapy and radiation treatment. … We see many women immediately after they have been diagnosed and help them understand there is are wonderful resources for them to meet their new norm.” From her site you can purchase items like skin care products, gentle cleansers, hair alternatives, wigs, turbans, hot flash wear, swim wear and intimate apparel.
You can shop at SusansSpecialNeeds

Another email comes from a woman providentially named Lori Hope.  Lori is a blogger and author of the book Help Me Live – 20 things People with Cancer Want You to Know. I will be reviewing her book in the coming weeks. Meanwhile her book if featured on our Book List under the new “Books By Bloggers” section.  Her blog What Helps.  What Hurts. What Heals is actually a CarePages feature that offers advice, mostly, as in her book, directed at the others in a cancer person’s life.  What Helps. What Hurts. What Heals. – CarePages Check out her book on Amazon Help Me Live: 20 Things People with Cancer Want You to Know

Finally the reading assignment for this month’s Being Cancer Book Club.  “The Middle Place” by Kelly Corrigan.  Read Chapters 1 thru 15, to page 91.  Focus on the author’s relationship with her father.  What are your thoughts?  What did you think about the structure of the book?  How do her relationships with her mother and her husband compare with that with her father?


About Dennis Pyritz

Dennis W. Pyritz, RN, BA, BSN, has been a cancer nurse since 1987 and a cancer and bone marrow transplant survivor since 2004. In December 2001 he was diagnosed with t-cell prolymphocytic leukemia (T-PLL), a rare aggressive form of chronic lymphocytic leukemia (CLL). Dennis was treated with the then new monoclonal antibody, alemtuzumab (Campath) as this disease has a median survival of 7.5 months. He achieved a 26 month remission but relapsed in February 2004. He was retreated with Campath and went into a second remission. In August 2004 he underwent an allogeneic peripheral blood stem cell transplant with his brother, Mark, as donor. Dennis has remained in remission since - a near miracle. Throughout his career as cancer nurse and patient, Dennis has had the opportunity to speal to both lay and professional groups. Dennis has spoken on cancer topics and survival issues across the country as well as in the United Kingdom, Norway, Austria, Portugal, Honduras, Panama, Guatemala, Trinidad, United Arab Emirates, Jordan, Cyrpus, Israel, and India.

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