E-mails and Site News

Pizza Face!

Pizza Face!

Statistics for yesterday’s visits were high.  The Neuroblastoma community is very strong and supportive.  It prompted the following email from Junita in Singapore:

“The way I stumbled upon your blog is very amazing… seems someone up there is paving the way for me to reach your blog… and especially to read today’s topic on Neuroblastoma.

First of all, I am not a cancer patient and live in a small country in Asia called Singapore. I have been following a blog of a 4 year-old Singaporean girl called Charmaine, who has been diagnosed with this “Monster” (that’s how Charmaine’s mummy calls the cancer) on 13th Feb 2009. Since then, the blog was started with aim of raising funds (US$350k) to allow Charmaine to get treatment in New York.

The fund raising is successful, and Charmaine is in New York now.

I am not sure where you are located, but I guess US. If you, or any of your contacts can pop by to see if they need any assistance, that will be great.

Charmaine is there with her mummy Cynthia and her 5 years old brother. I do not know them personally. But I imagine they may need some help now… This is her blog…Feisty Princess Charmaine

I checked out the blog, which is listed in our Cancer Blog Links page, and it is being kept current and following Charmaine daily progress with photos at Sloan Memorial Kettering in New York.

Speaking of the blogroll, we have not passed 620 blog links.  Big additions have happened with Multiple Myeloma, Ovarian, childhood leukemia, neuroblastoma and prostate cancers.  I have found several hundred other blogs that are no longer active so I didn’t include them unless they contained a concise history of one of the less documented cancers.

I have also received a number of inquires about book reviews, these from the suthors and not the publsihers.  From Anne Orchard in the UK I received Their Cancer – Your Journey: A Traveller’s Guide for Carers, Family and Friends.  I will be reviewing that in the near future.  I just received an email from Sigourney Check, a CLL survivor,  about her new book, Patient Siggy.  I will be reviewing that also.  From Scott Seaman, a non-Hodgkin’s lymphoma survivor, I received notification of the publication of his new book Battling and Beating Cancer – The Cancer Survival Book.  If you’re into music, you might be interested in a new CD to be leased in September by a band composed of gynecologic oncologists calling themselves N.E.D. (No Evidence of Disease).  More about all of these later.

Being Cancer has been placed on a list at Webicina.Com • Cancer.  This site is designed for both medical professionals and “empowered patients”.  We also have a listing on Blogged – Home with a ranking of 8.3 or “Great”.  We also have a listing on Being Cancer on Technorati– write a review if you’d like.

Incidentally my paranoia about relapse was just that.  At the clinic last week I had a normal wbc and hemoglobin although my platelets remain, after five years, subnormal at 95,000.  The white cell differential also had a normal profile.  So I don’t have to fret for another three months.

Comments concerning monetizing the blog were almost all positive.  This may motivate me to finally upgrade my WordPress blogging software.  I chickened out the last two times.  I also want to be able to justify spending more time on a few site projects: annotating the Cancer Resources page; creating a new Cancer Book Review Page; spiffing up the Cancer Blog Links page and separating out new sections for testicular, pancreatic, and few other less common cancers; adding useful widgits; and possibly going to a three column format.  Starting tomorrow I will be starting another brand new page, one devoted to Healthcare Reform.  I do not want to have a highly political blog but I don’t believe that it is responsible to stay out of the public debate.  Watch for Friday’s post introducing this new feature.

Readers seem to be enjoying the August Book Club selection The Light Within. I have been in touch with one of the authors, Dr. Lois Ramondetta, who may be joining our discussions

Comments and daily readership have been on a steady rise (almost 12,000 visits).  I really appreciate that.  I hope that this means that we are publishing materials and resources of value to the cancer community.

Take care, Dennis

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About Dennis Pyritz

Dennis W. Pyritz, RN, BA, BSN, has been a cancer nurse since 1987 and a cancer and bone marrow transplant survivor since 2004. In December 2001 he was diagnosed with t-cell prolymphocytic leukemia (T-PLL), a rare aggressive form of chronic lymphocytic leukemia (CLL). Dennis was treated with the then new monoclonal antibody, alemtuzumab (Campath) as this disease has a median survival of 7.5 months. He achieved a 26 month remission but relapsed in February 2004. He was retreated with Campath and went into a second remission. In August 2004 he underwent an allogeneic peripheral blood stem cell transplant with his brother, Mark, as donor. Dennis has remained in remission since - a near miracle. Throughout his career as cancer nurse and patient, Dennis has had the opportunity to speal to both lay and professional groups. Dennis has spoken on cancer topics and survival issues across the country as well as in the United Kingdom, Norway, Austria, Portugal, Honduras, Panama, Guatemala, Trinidad, United Arab Emirates, Jordan, Cyrpus, Israel, and India.

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