Site News for June

Barney

Barney

The big news is that Being Cancer has been listed as one of the Top 50 Cancer Sites & Resources by a site called Asbestos News (.com).  A number of my fellow bloggers (whom you can find in Cancer Blog Links) are included in the list.  The compiler has also left a short description of each site.  I just happened to notice the URL on my statistics page as a “referrer” so I checked it out.   Apparently they hadn’t notified anyone of their inclusion on the list so I sent a congratulatory message to each blogger listed.  A list like Top 50 Cancer Sites & Resources is a great way of building the cancer blogging community.

I have also been working on the blogroll and have added a dozen or so new sites.  I started a new category called “Widows/widowers Blogs“.  There seemed to be a whole separate community of bloggers who have lost a spouse to accident, cancer, heart attack, stroke, etc.  I thought that such a category might be of value to this community or people associated with it or else searching for something like that.  Most of the entries are by spouses of cancer victims.  However, I was not able to ascertain this in every case.  So if the writing was good and relevant, I added the site.

The other addition I made was separating out survivors of sarcoma in its own catgory.  First there were enough of them that I could pull them out of the “Uncommon cancers” section.  Secondly sarcoma can arise from disparate body sites not just the bones.  The disease is distinction enough to warrent its own section.

I mentioned in yesterday’s post about the disparity of female to male bloggers, and to the disparity of the numbers of bloggers on a disease like Hodgkins lymphoma to its actual incidence.  Some diseases like prostrate, lung, liver, etc seem underrepresented in the blogging community.  This poses some interesting sociological and political questions.  As I said I will try to do some basic statistical analysis of the numbers of different cancer blog sites versus the incidence of the disease.  Then maybe we can arrive at some strategies to reach out to these people and introduce the idea of blogging.  I think that if you know there is a community of bloggers out there with your type of cancer, you might be more motivated to start your own blog.  The “Blog Primer” page gets a lot of traffic so I hope it is helping people.

Just a note  – I haven’t yet upgraded my WordPress software.  I ran out of time that weekend.  Also I have an underlying fear that the site may crash if I don’t install the new version correctly.  But the advantage is elimination of some bugs and ease at customizing different features and potential features of the site.  I want to make it more useful and more attractive to readers.

The Book Club seems to be catching on.  I’ll be announcing the July selection soon so you can order it or check it out at your local library.  Readership numbers are generally high on Monday, Book Club Discussion Day though people are still somewhat reluctant to offer comments.  Everyone’s imput is appreciated both by me and by the blog’s readers.  I realize that you have to register to leave a comment.  But this is a very simple process.  I believe all that you have to do is select a login and a password.  No other personal information is required.  I never even get a list of people registered.  (The process must be easy because I have gotten over 1500 spam comments!)

Coming up tomorrow in the Friday News Roundup I am thinking of posting portions of a list of cooking tips for cancer patients sent in by one of our readers.  Just coincidentally I had also gotten a message from another reader citing the nutritional issues that he was struggling with.  Just keep those cards and letters coming in, folks.  Ya know I luv’em.

Take care, Dennis

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About Dennis Pyritz

Dennis W. Pyritz, RN, BA, BSN, has been a cancer nurse since 1987 and a cancer and bone marrow transplant survivor since 2004. In December 2001 he was diagnosed with t-cell prolymphocytic leukemia (T-PLL), a rare aggressive form of chronic lymphocytic leukemia (CLL). Dennis was treated with the then new monoclonal antibody, alemtuzumab (Campath) as this disease has a median survival of 7.5 months. He achieved a 26 month remission but relapsed in February 2004. He was retreated with Campath and went into a second remission. In August 2004 he underwent an allogeneic peripheral blood stem cell transplant with his brother, Mark, as donor. Dennis has remained in remission since - a near miracle. Throughout his career as cancer nurse and patient, Dennis has had the opportunity to speal to both lay and professional groups. Dennis has spoken on cancer topics and survival issues across the country as well as in the United Kingdom, Norway, Austria, Portugal, Honduras, Panama, Guatemala, Trinidad, United Arab Emirates, Jordan, Cyrpus, Israel, and India.

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