Category: Guest Post *

Jan 27 2012

Breast Reconstruction ? a definite yes! – guest post

Jen, who writes at The Dinoia Family, offers some strong personal arguments in favor of breast reconstruction.  She argues effectively against those who might suggest that such surgery is arbitrary and needless

I can’t describe it as anything other than sheer

glee.

Well, that might be a *wee* bit strong for now, but I honestly think it is what I have been feeling for the past week or so.  In other words, that first post-surgical blog post was not just the meds talking.  If you remember, I was a bit stressed about the surgery, so much so, that I took a ‘relaxation’ pill the night before.  I kept the stiff upper lip and tried to be positive, but also allowed myself to think that the surgery could fail, the worst-case scenarios would happen and I would end up regretting everything.  Given that I did not expect that my world was going to improve 1000% overnight, imagine when it did?

Okay, okay, we’ll leave it at 990% for now.  After all, I do have a follow-up surgery and some tweaking, but overall I am so content.  I KNOW without a doubt that the DIEP was THE best procedure for me and I am so glad that I have so many friends who would not let me skip this opportunity.

Do you know what I did last week?  When it was finally time to take that first, real post-surgical shower, I looked in the mirror.  I gave a long, hard look and do you know what I saw?  I saw resolution.  I saw (and felt) a decision that will never, ever be regretted.  Despite what some people say, despite that there are entire groups who feel that reconstruction is a waste of time and money, I will forever be grateful for the foresight I had to research my options and go with my gut.

You see, there are many people out there who believe that reconstruction is useless.  There is the idea that breast cancer is over-sexualized and it’s all about “saving the ta-tas.”  Trust me, by the time you get to my point (and remember that I was only Stage 1 and am doing just fine), there was little or no saving to be done. There rarely is at that point and all of the awareness in the world is fine, but it won’t necessarily prevent you from losing body parts that you have come to appreciate.

Now, one might say, “But, my God, you get to live!”  Well, it’s not as if I went off on a bender, driving down the wrong side of the road or spent my days living in an otherwise reckless manner.  As some people like to say, it was a complete crapshoot.  However, that begs the question:   Why are those who are stricken suddenly supposed to hate a body part and want to immediately part with it?  Why are we supposed to be grateful to have our chests mutilated, our skin burned and perhaps our bodies filled with toxins?  If we didn’t do anything wrong, then each additional “fix” just adds insult to injury.

Yet each and every day, I read of someone who decided against reconstruction because she doesn’t need a breast to be a woman.  No, I suppose one doesn’t.  So, then, many women who opt for reconstruction are made to feel as if they are somehow desiring to be pin-up models or are trying to enjoy that size C that God forgot to give us in the first place.  So, here is my question:  If a man had to undergo something similar (say a slightly different type of cancer) and he wanted reconsctructive surgery, would he be made to feel like less of a man?  Would he be told to just cut it off, that it doesn’t define who you are, so just get over it already?

Somehow, I think not.  So why can’t women enjoy the same privilege?  Why is it assumed that we are aching for a Playboy contract (let’s face it, that’s not happening) or that we don’t feel whole without body part that so many deem to exist solely for a sexual purpose?

Maybe, just maybe, it’s like any other body part.  Would you not be upset to lose an arm or a leg?  So, why are we so quick to decide that this is so much less necessary than any other limb?

For many women, the breast is much more than just a sexual object, as it is also a primary source of nourishment and comfort for wee ones.  I don’t know how I would have gotten through the feeding and comforting of three children without them.  Yet, because a miserable cell invaded one of mine, I am supposed to discard it like yesterday’s trash. I was supposed to look in the mirror and feel whole again despite the fact that there was a blank slate where one of my primary tools of early parenting was cut off, poked, prodded, tested and thrown away.  I was supposed to feel stronger and more self-assured because I lost a body part?

No, thank you.  If there is an option to make me look and feel whole again, I will take it. I look in the mirror now and while I don’t see a perfectly matching set (but never did), I do see a work in progress.  I have cleavage that looks and feels natural.  I feel pressure, pain and hot and cold in growing amounts each day. Nicholas can snuggle up against me (okay, not right now, but one day soon) and he will be able to rest his head on my chest as we read books or tell stories and it will feel as natural and normal as it did in the past.  However, decidedly, the best part of the whole situation is how I feel at the moment.

I feel Glee (yes, with a capital “G”).  Glee for making the right (and only) decision for me.  I feel sorry for those who feel as though they have to continue to push the idea that reconstruction is somehow bad or wrong.  I would never tell someone that they should or shouldn’t (though would give my experience if asked) and think that the needs of the person dictate what should happen.

I also do not think that it is correct to imply that anyone who pursues their surgical options naturally has less self-confidence.   In fact, I feel quite the opposite.  I took a huge risk and had to have not only an enormous amount of confidence in my doctor, but also in myself….and thus far, nearly 11 days later, I do not have one regret nor do I expect I ever will.

from: The Dinoia Family

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Jan 24 2012

Neighbor Battles Cancer – guest post

Last summer my neighbor and good friend was diagnosed with triple negative breast cancer.  She decided to be treated at the community hospital where I worked for 20 years.  So I knew all of her doctors and many of the nurses and technicians caring for her.  Chris does in home daycare.  So I most often see her in the summer when my granddaughters are spending a lot of time at our house.  We would always walk down when the kids were playing in the drivewayMy girls would bring their bikes or scooters, toys, dolls, and cookies to share.  We would sit in the driveway and watch the kids, exchanging news and neighborhood gossip.  She and her husband are self-employed so they had less than optimal healthcare options, part of the forgotten America the healthcare reform bill was meant to serve.

Chris started a Caringbridge page in addition to her Facebook updates.  When I read her January post, I felt I had to republish it here.  Like so many of us making a year’s end assessment, she has focused on the blessings as much as the suffering that cancer brings.

New Year, new me

Hello everyone,

I have never been so glad to see a year end !  2012 Will be a new year with new beginnings for me.  I finished all of my treatments just before Christmas.  It was a perfect time to wrap treatments up.  After  12 weeks of chemo and 36 radiation treatments I am finally finished.

My Oncologist said they have surgically removed, poisoned (chemo) and burned (radiation) every cancer cell that they could.  I am considered in remission.

It is frustrating  though because with Triple Negative Breast cancer that even though it is the worst kind of breast cancer, very aggressive ,there are no blood tests or other test  to prove it is all gone.  The treatments are like an insurance policy they tell me.policy.

They cautioned me that most women experience depression when treatment ends. I however refuse to let myself go there. I do feel somewhat anxious now that the heavy duty treatments have ended and I am somewhat on my own.  Will it come back ? What do I fight it with currently ?

I know I have a wonderful support system to rely on and now that treatments are over. Also I plan to rely on my spiritual side to continue to help me stay strong. I have felt empowered by all of you with your kindness and prayers. My niece pointed out that it is like everything I have ever done for anyone has come full circle back to me. That is very true. It has been overwhelming all the love I have felt.  I could never have imagined how kind everyone would be !!

I can honestly say that more good has come from the last 7 months than bad.  I have seen many other patients in much worse shape than myself and it made me feel like one of the lucky ones if there is such a thing with cancer. Lucky  however I did not have cancer when my sons were young, the situation my late Mother had to endure.

There were so many rules to follow during treatment that I now feel free at last. Free to try to return to normal. For example free to eat blueberries and other antioxidants once again.  Free to take supplements, free to wear a bra !  Free to use a regular toothbrush because there are no more blisters in my mouth from chemo,Free to wear a deodorant that might contain aluminum…even though the aluminum is not good for any of us.Free not to force myself to consume 64 oz of water, free to drink WHATEVER I want like wine  :) AND free to watch my hair slowly growing in now. Free to have my hair colored again, that is as soon as I grow enough to color !  Did I really expect it to grow in blonde ?? I have never seen myself any other way.

I see one of my 3 oncologists  in 2 weeks and I will continue to be watched closely for a while but basically the worst is behind me.

In fact the day I “graduated”, they even gave me a diploma, from radiation my husband Tom went out and bough me some graduation presents ! Some beautiful Susan Komen Breast cancer jewelry that are now dear to my heart.

Speaking of hearts…I am so happy to mention that Tom is also doing very well after his Open Heart Surgery.  What a pair we are.

His surgeon said that people often die from what he had and it was  a very serious situation. Dr Storey said it is a very slow recovery, 3 months, but Tom is doing very well.

We are both truly  blessed to have such good outcomes from such a scary time. A new year and renewed health for both of us !

Again, Thank you so much for your support !

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Jan 13 2012

The Crux of Cancer – guest post

Here is another more positive outlook for the new year.  It is written by a professional writer and lymphoma survivor blogging at OPEN Mike

For more than three years now I have sumo wrestled with the Emperor of all Maladies, each of us trying to throw the other out of the ring. (At 145 pounds I may be in the wrong sport but, hey, I’m feisty.) Our next honbasho starts on Jan. 12.

Here are five things I’ve learned about my foe:

Cancer is an accumulation of accidental cellular events that conspire to take down the whole system, slowly building momentum over the years until it reaches a tipping point and then cascades out of control toward the grave.

Cancer can take decades to mature, during which the initial mutation is augmented by other random genetic changes, fueled by carcinogens in our food and environment and super-charged by stress.

Cancer is born in, and borne along by, the genes, as Dr. Mukherjee points out: “Abnormal genes governed all aspects of cancer’s behavior. Cascades of aberrant signals, originating in mutated genes, fanned out within the cancer cell, promoting survival, accelerating growth, enabling mobility, recruiting blood vessels, enhancing nourishment, drawing oxygen—sustaining cancer’s life.”

Cancer hijacks the body’s normal processes to its own narcissistic ends. There’s nothing extraneous about cancer. It doesn’t invent new proteins or pathways but exploits existing ones, like mitosis and motility, while overriding built-in safeguards like apoptosis and tumor-suppressor genes.

Cancer has vulnerabilities; it can be beaten—or at least beaten back for several years—by a combination of healthy habits and medical treatments. My seven-fold strategy includes: a positive attitude, a sense of humor, a plant-based diet, targeted intervention (surgery, radiation, chemotherapy), submissive prayer, a focus on others, and the loving support of family and friends.

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Jan 11 2012

Dear Mom, I’m Married – guest post

I thought that this post would be a good way to start the year.  It combines sadness with hope, a place we often find ourselves in.  This is certainly true of those of us battling cancer.  It is true for those who cherish and love us.  And I can say it is true for we professional  caregivers who choose to follow this journey, experiencing sadness and hope month in and month out.

Dear Mom, I’m married.

Hi Mom,

It’s been a while since I’ve written. My last post, when I just got engaged, pretty much described everything leading up to the wedding. I survived it all and even had a great time. A lot of people have been talking to me about it, asking me how it went, so here’s the list of what I thought I wouldn’t survive – and what ended up happening:

  • You won’t be there for me to tell you I am engaged. You weren’t, but I survived.
  • You won’t be there to help me with the preparations. But Grandma came with me to be fitted for the dress the first time (the seamstress offered her a job), my baby sister the second, and my good friend the third. Shanainai tied it for me and everything. I survived.
  • Your name will be listed as z”l (deceased) on my wedding invitation – or is it not supposed to be listed at all? I have no idea. A non-issue. We didn’t list any parents on the invite, we just made the invitation from us. That was easy. I survived.
  • You won’t be at the signing of the Ketubah. Neither was any other female. If anything, you were there, but I wasn’t. I didn’t even know when it happened. Survived.
  • You won’t be walking down the aisle. Grandma went with me instead. The rabbi suggested it, and I loved the idea. So did she. Definitely survived.
  • You won’t be under the chuppah with me. Grandma was. But then again, so were you. I know it was you that made that wind blow and knock everything over. Definitely survived.
  • You won’t be beaming down at me. Ever. No, but there’s nothing I can do about that. I guess I accepted it, so I survived.

The truth is, the  most stress I had about and from the wedding was that I was afraid of the attention. I was hoping no one would mention you when they saw me, and thankfully just about no one did, other than a few of the elderly. But I had that invisible “pretend you are someone else” wall up, and it worked perfectly.

In fact, everything went very smoothly, from the planning (which I hated, but I would have hated it if you were here, too, to be fair), all the way through the wedding. I had more offers of help than I knew what to do with, and The Boy and I knew what we wanted and wouldn’t let anyone bully us into something we didn’t want to do. Well, we did invite a few people I didn’t want to invite, but The Boy was right, it wasn’t worth the fight.

I had the sleeves from your dress removed, and the back opened up with a corset-type thing to tie it with, and the dress ended up being great. I would have preferred to be a few pounds lighter, but who wouldn’t… Dad’s best friend growing up actually asked me at the wedding if it was your dress – he somehow remembered your dress from 36 years before!

I’m so happy I got to wear it. There were a few times where I felt I  missed out on the choosing-a-dress part of the wedding, but the truth is it doesn’t matter – who wouldn’t rather wear their mother’s dress if it was as gorgeous as it is? There were times where I would suddenly think, I can’t believe my mom danced in this and ate in this and got married in this. I thought it would make me cry, but I loved it. By the way, I hope you didn’t take it personally that I changed clothes when we were dancing. I was just jealous of The Boy and wanted to be part of the t-shirt fun, too.

The wedding itself went by in a second and a half, like everyone said it would. I survived the family picture taking (mostly because people were already coming, so I just wanted it to be over), the reception was great, and the hike to the chuppah was a lot of fun. After a brief 10 minutes when we couldn’t find Grandma, she appeared, and the ceremony started.

It was the fastest 10 minutes of my life. I felt like an actress playing a part, just I was surrounded by people I love instead of random actors and stand-ins. At one point, the rabbi said that Jewish tradition says that 3 generations back come to visit at the chuppah, and that we have to mention your absence. I swear, he could have been talking about sauerkraut if you were to judge by my reaction. I can’t believe how calm I was. The only time a few tears fell down my face was when I heard Grandma sniffling beside me. Of course, The Boy is amazing and took  me hand the second he heard it, just to beam some extra strength into me (which worked, of course).

And then she asked when do we kiss already, so that was over.

The rabbi picked up one of the glasses of wine, started the first prayer, and then an insane gust of wind blew in and knocked everything over – the other glass, the ring, etc.

My reaction: Yey, The Boy broke the glass succesfully

The reaction of the 175 other people at the wedding: That was Talia’s mom.

Thankfully, I made no connection. I didn’t think about it at the chuppah, I didn’t realize it during the wedding, and only later when I got home, people started talking to me about it.

And as it turns out, everyone thought it.

So I’ve accepted it. Even though I am not mystical in any way, I kind of like the idea that you made a statement and said, “Ahem! I am here! I am in the dress and the wind and the glass of wine that just shattered on the floor.”

So the wedding went by smoothly, and honestly, it couldn’t have been more perfect, that is other than you actually being there. Everyone laughed and danced and ate and had a great time.

I waited a while to write about the wedding because I was waiting for a nervous breakdown. A week passed, another week passed, and another, and I was OK. I don’t know how. And then suddenly it was just over; Reports of the impending emotional storm were greatly exaggerated.

A few weeks after the wedding, I started feeling really weird. Not sick or anything, but just weird. After a few more weeks of weirdness, I decided to take a small test.

It had 2 definite lines on it. I am pregnant.

A few weeks later, the doctor was able to tell me exactly what day we conceived.

It was 5 days after the wedding.

On your wedding anniversary.

from Daughter of Cancer

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